Alkaptonuria

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Ginny Wilken
Posts: 324
Joined: Sat Jun 26, 2004 10:00 pm

Alkaptonuria

Post by Ginny Wilken »

Has anyone had experience with treating this condition? It's generally
assumed to be a genetic disorder, and thus conventional medicine offers
no resolution - fancy that...

I have met a woman who has this, with symptom onset delayed until
adulthood. It's pitiful and horrid. Thanks for any insight; I've read
the medical background, but would love to find more hope.

ginny

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Ginny Wilken
gwilken@fastmail.fm


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