Help!!! More Taro
Posted: Wed Dec 10, 2003 5:30 am
Hi all (this is long, but I'd *love* thoughts from you more clinically
experienced ones!!!!),
My friend who's had trouble since nibbling raw taro leaf has asked me for
suggestions on the latest developments, and I would be grateful for any
thoughts, as I'm way out of my depth.
Recap: About three months ago she nibbled a tiny bit of raw Hawaiian taro
leaf. Within seconds felt sharp pain in throat and mouth, and then tongue
and throat began to swell. Friend called ambulance and she was treated at
ER. There's been several "chapters" between then and now, which I will
will get details of if anyone wants.
The type of taro she ate is known by to toxic when raw, but her reaction has
been way beyond the "usual", and her primary trouble, severe asthma,
shortness of breath and chest pain -- all entirely new since this episode --
is apparently not part of the usual picture of that poisoning. (The
expected course would have been severe but fairly short-lasting irritation
to the mucus membranes that were contacted; hers has gone on and on, and now
mainly involves irritation(?) or inflammation(?) to tissues not directly
touched by the leaf. Evidently she had an allergic response, but why does
it go on and on?
Early on, causticum and arnica both seemed unhelpful. Since then she has
simply followed various doctors' instructions, and the results at this point
are distressing (bad side-effects from both cortisone and codeine!!!) Also,
the chest pain/trouble breathing does not seem to be getting any better, and
no one knows why, or what causes the continuing trouble. (Perhaps
aggravated by the meds, and she is slowly tapering them.)
The trouble now centers in her chest, with very severe asthma, shortness of
breath, and severe pain in the chest (details shortly).
Pulmonary function tests are normal, so her doctors don't know how to
explain the continuing trouble breathing (not constant, but apparently comes
back when the pain does, see below).
She has been taking cortisone for presumed inflammation. It helps briefly,
but insuffiently. But when she stops the cortisone, the pain becomes
unbearable (with attendant severe trouble breathing).
She has been taking cortisone 30c to try to mitigate the bad effects of
it. She says that it seems to help, but can't say how, or how much,
because her symptom picture is so unstable anyway.
She has been tapering off the cortisone (down from 60 mg daily to 11),
but is doing it very slowly because she feels so very bad after each
reduction.
Her doctor has her tapering on a schedule, 1 mg reduction per week, and
with the frequently changing dosages and I don't know what else, she says
there is "no stability [of the symptom picture] in sight, has been none for
months, which is part of why she can't tell me just what the effect of the
cortisone in potency is, and will not be able to do so. (Comments?
Wouldn't it be reasonable to let her stabilize in between reductions???)
She has also been taking codeine for the pain, which is severe in spite of
cortisone, and this is another reason it's hard to get good information.
E.g., I asked what her emotional state has been, and her M/E response to the
whole situation. She answered, "I don't know!... There's cortisone
withdrawal... What do I mean. I am so intoxicated... I was in the middle
of a suppport group, someone was talking, we had just been asked a question
and I have no idea what it was. I have no idea what happened in those 20
minutes. Right now I haven't had any [codeine] since middle of night [some
8 hours previously?], and I'm in a hallucinatory state. I can't explain.
I'm really drugged. While I'm talking to you there's images and words and
stuff floating thru my head. I've been on codeine for months now, taking it
every four hours. But if I don't take it I get this burning and aching pain
in my chest. Right when i take it I tend to get really intoxicated. Three
hours later I'm a little more coherent but my chest starts hurting again."
She says her head has not really been clear in months (tho even a few weeks
back her did not sound so confused on the phone...)
MY THOUGHTS, seeking input:
- Looking again thru old notes, I see Suriya's use of cortico to reverse
effects of suppression by steroids. This is probably something we should
do?
I see she has found it to reverse not only effects of the steroids, but
sometimes also the condition for which they were taken in the first place,
and explains that from the fact that adrenals are suppressed by steroids,
and cortico is an extract of the pituitary gland which stimulates the
adrenals. She has been very, very severely "adrenally compromised" for a
long time, so perhaps this plays into why she has developed this severe and
long-lasting reaction to the taro toxin???
- Another thought is to give her codeine in potency, along with the
potentized cortisone (or perhaps cortico instead)? Or should I initially
leave that alone, or handle it first, argh!!!
Her description from yesterday morning of the chest pains:
***Chest pain since I've had since I ate that taro leaf, which no one seems
to be able to explain. The pulmonologist quit [stopped working with her]
bcause she dcouldn't find anything on her lung function test... [Lung
function tests come out normal, yet her trouble breathing continues,
sometimes quite severely. Helped somewhat by cortisone, but not well
controlled and now the cortisons is causing problems...]
The chest pain: Feels deep in my chest, more on left side.
There are two kinds of pain: One which tends to be in center of chest,
sharp, spasmy, like my whole bronchial tube freezing up.
Then there's pain that's more broad, across my chest, more on left, and in
middle of back as well as in front, this deep, aching, burning pain. It's
horrible. It's really hard to breathe thru it. I start feeling really
tight in my whole chest. I keep trying to take breaths in. They tell me
there's nothing wrong with my breathing, but I keep fighting to breathe. I
get short of breath when the pain is intense. [I tried to determine whether
the SOB is nervous reaction to the pain or a concomitant/co-effect, and it
seems to be the latter.] From center of chest, out.
Heat, hot water, seems to help. ... In a hot shower the steam makes it
worse, but not water on back makes it better. Heat, hot water, seems to
help. Haven't been able to take hot baths since can't bathe unsupervised
(due to possible seizures). In a hot shower the steam makes it worse (see
below re "light touch"?), but hot water on back makes it better.
The skin gets really sensitive.
Can't stand light touch!!! (In the region of the back pain only)
Excruciatingly painful, burning, horrible. Had massage, had to keep telling
her to press *hard*. Because the nerves in my skin on my back are
hypersensitive (to light touch). Sometimes lying down makes it better,
sometimes worse. Any pressure on chest is terrible, makes it hard to
breath. Can't slouch, have to sit to make the most room in chest or it
hurts more.
That sensitivity to light touch seems the best clue I see so far, so I am
looking at these:
GENERALITIES; TOUCH; agg.; slight: Acon., Apisin., ars., Bell., Chin.,
coff., colch., ham., Hep., ign., Kali-c., Lach., lyss., mag-m., Merc.,
merc-c., mez., murx., nit-ac., Nux-v., ox-ac., ph-ac., phos., sep., sil.,
spig., stann., sul-ac.
(I had looked for such a rubric in Skin, but don't find one there.)
GENERALITIES; PRESSURE; amel.; hard; slight agg.: agar., aloe, bell.,
calc-f., cast., caust., chin., culx., ign., kali-c., lac-c., lach., mag-p.,
nux-v., plb., psor., sulph.
(I'm not sure this second fits; she does not specifically say that pressure
I know there are lots more rubrics I should be able to get out of this and
tomorrow I'll get back to work on it, but I feel I am sooooooo floundering
with various aspects of this. All thoughts welcome, from any brave souls
who have made it this far (weak smile)!
Thanks so much,
Shannon
experienced ones!!!!),
My friend who's had trouble since nibbling raw taro leaf has asked me for
suggestions on the latest developments, and I would be grateful for any
thoughts, as I'm way out of my depth.
Recap: About three months ago she nibbled a tiny bit of raw Hawaiian taro
leaf. Within seconds felt sharp pain in throat and mouth, and then tongue
and throat began to swell. Friend called ambulance and she was treated at
ER. There's been several "chapters" between then and now, which I will
will get details of if anyone wants.
The type of taro she ate is known by to toxic when raw, but her reaction has
been way beyond the "usual", and her primary trouble, severe asthma,
shortness of breath and chest pain -- all entirely new since this episode --
is apparently not part of the usual picture of that poisoning. (The
expected course would have been severe but fairly short-lasting irritation
to the mucus membranes that were contacted; hers has gone on and on, and now
mainly involves irritation(?) or inflammation(?) to tissues not directly
touched by the leaf. Evidently she had an allergic response, but why does
it go on and on?
Early on, causticum and arnica both seemed unhelpful. Since then she has
simply followed various doctors' instructions, and the results at this point
are distressing (bad side-effects from both cortisone and codeine!!!) Also,
the chest pain/trouble breathing does not seem to be getting any better, and
no one knows why, or what causes the continuing trouble. (Perhaps
aggravated by the meds, and she is slowly tapering them.)
The trouble now centers in her chest, with very severe asthma, shortness of
breath, and severe pain in the chest (details shortly).
Pulmonary function tests are normal, so her doctors don't know how to
explain the continuing trouble breathing (not constant, but apparently comes
back when the pain does, see below).
She has been taking cortisone for presumed inflammation. It helps briefly,
but insuffiently. But when she stops the cortisone, the pain becomes
unbearable (with attendant severe trouble breathing).
She has been taking cortisone 30c to try to mitigate the bad effects of
it. She says that it seems to help, but can't say how, or how much,
because her symptom picture is so unstable anyway.
She has been tapering off the cortisone (down from 60 mg daily to 11),
but is doing it very slowly because she feels so very bad after each
reduction.
Her doctor has her tapering on a schedule, 1 mg reduction per week, and
with the frequently changing dosages and I don't know what else, she says
there is "no stability [of the symptom picture] in sight, has been none for
months, which is part of why she can't tell me just what the effect of the
cortisone in potency is, and will not be able to do so. (Comments?
Wouldn't it be reasonable to let her stabilize in between reductions???)
She has also been taking codeine for the pain, which is severe in spite of
cortisone, and this is another reason it's hard to get good information.
E.g., I asked what her emotional state has been, and her M/E response to the
whole situation. She answered, "I don't know!... There's cortisone
withdrawal... What do I mean. I am so intoxicated... I was in the middle
of a suppport group, someone was talking, we had just been asked a question
and I have no idea what it was. I have no idea what happened in those 20
minutes. Right now I haven't had any [codeine] since middle of night [some
8 hours previously?], and I'm in a hallucinatory state. I can't explain.
I'm really drugged. While I'm talking to you there's images and words and
stuff floating thru my head. I've been on codeine for months now, taking it
every four hours. But if I don't take it I get this burning and aching pain
in my chest. Right when i take it I tend to get really intoxicated. Three
hours later I'm a little more coherent but my chest starts hurting again."
She says her head has not really been clear in months (tho even a few weeks
back her did not sound so confused on the phone...)
MY THOUGHTS, seeking input:
- Looking again thru old notes, I see Suriya's use of cortico to reverse
effects of suppression by steroids. This is probably something we should
do?
I see she has found it to reverse not only effects of the steroids, but
sometimes also the condition for which they were taken in the first place,
and explains that from the fact that adrenals are suppressed by steroids,
and cortico is an extract of the pituitary gland which stimulates the
adrenals. She has been very, very severely "adrenally compromised" for a
long time, so perhaps this plays into why she has developed this severe and
long-lasting reaction to the taro toxin???
- Another thought is to give her codeine in potency, along with the
potentized cortisone (or perhaps cortico instead)? Or should I initially
leave that alone, or handle it first, argh!!!
Her description from yesterday morning of the chest pains:
***Chest pain since I've had since I ate that taro leaf, which no one seems
to be able to explain. The pulmonologist quit [stopped working with her]
bcause she dcouldn't find anything on her lung function test... [Lung
function tests come out normal, yet her trouble breathing continues,
sometimes quite severely. Helped somewhat by cortisone, but not well
controlled and now the cortisons is causing problems...]
The chest pain: Feels deep in my chest, more on left side.
There are two kinds of pain: One which tends to be in center of chest,
sharp, spasmy, like my whole bronchial tube freezing up.
Then there's pain that's more broad, across my chest, more on left, and in
middle of back as well as in front, this deep, aching, burning pain. It's
horrible. It's really hard to breathe thru it. I start feeling really
tight in my whole chest. I keep trying to take breaths in. They tell me
there's nothing wrong with my breathing, but I keep fighting to breathe. I
get short of breath when the pain is intense. [I tried to determine whether
the SOB is nervous reaction to the pain or a concomitant/co-effect, and it
seems to be the latter.] From center of chest, out.
Heat, hot water, seems to help. ... In a hot shower the steam makes it
worse, but not water on back makes it better. Heat, hot water, seems to
help. Haven't been able to take hot baths since can't bathe unsupervised
(due to possible seizures). In a hot shower the steam makes it worse (see
below re "light touch"?), but hot water on back makes it better.
The skin gets really sensitive.
Can't stand light touch!!! (In the region of the back pain only)
Excruciatingly painful, burning, horrible. Had massage, had to keep telling
her to press *hard*. Because the nerves in my skin on my back are
hypersensitive (to light touch). Sometimes lying down makes it better,
sometimes worse. Any pressure on chest is terrible, makes it hard to
breath. Can't slouch, have to sit to make the most room in chest or it
hurts more.
That sensitivity to light touch seems the best clue I see so far, so I am
looking at these:
GENERALITIES; TOUCH; agg.; slight: Acon., Apisin., ars., Bell., Chin.,
coff., colch., ham., Hep., ign., Kali-c., Lach., lyss., mag-m., Merc.,
merc-c., mez., murx., nit-ac., Nux-v., ox-ac., ph-ac., phos., sep., sil.,
spig., stann., sul-ac.
(I had looked for such a rubric in Skin, but don't find one there.)
GENERALITIES; PRESSURE; amel.; hard; slight agg.: agar., aloe, bell.,
calc-f., cast., caust., chin., culx., ign., kali-c., lac-c., lach., mag-p.,
nux-v., plb., psor., sulph.
(I'm not sure this second fits; she does not specifically say that pressure
I know there are lots more rubrics I should be able to get out of this and
tomorrow I'll get back to work on it, but I feel I am sooooooo floundering
with various aspects of this. All thoughts welcome, from any brave souls
who have made it this far (weak smile)!
Thanks so much,
Shannon