Guillian Barr Syndrome
Posted: Tue Sep 10, 2002 6:11 pm
I've been reading an interesting book called : "Bed Number Ten" by Sue
Baier and Mary Zimmeth Schomaker. It's the biography of Sue Baier who
went through, and is still recovering from Guillain-Barr Syndrome.
Until reading this book, although reading questions from other posters
on different lists, I had not ever realized what this was, or how it
affected a person.
This disease is basically from a Viral infection, if I understand it
right, and causes total paralasis of the body, leaving mental awareness
intact. In Sue's case, she could only move her eyes. This allowed for
very limited communication, with blinking.
She was in the hospital for 10 months, and then sent home with private
nurses and physical therapists, to continue to recover. She had a Trach
tube for breathing, a feeding tube for feeding, as she couldn't swallow
on her own. She had IV's for fluids and antibiotics, etc.... which some
of the time was in the form of a heprin lock, as her veins had
collapsed, and couldn't replace IV's without this.
As I was reading, the emotions and pain she went though, from "some"
uncaring "professionals", as well as the shut off feeling of not being
able to communicate needs, and the unaware nursing staff with regards to
proper training of suctioning, reading and comprehending charts,
duplication of proceedures due to noncommunication between physicians,
and insensitivity to modesty with regard to leaving to "chat", while
leaving her uncovered for extended periods of time..... I was truely
sympathetic.
I was left questioning:
If an alternative approach was taken, what would the options, and
outcome be?
This disease attacks the Myelin Sheath, like so many nerve conditions.
Would similar proceedures, and modalities work well for this as for
say, Multiple Sclerosis, Polio, Parkenson's???
Would Phosphorus, in homeopahtic dilutions, and variations (Nat., Kali.,
etc) as well as Hypercum, help? What about St. John's wort herbs and
Essential Oils for Massage? Would these have helped stop the
inflamation / infection, and begin healing faster?
Rife Frequencies, Sound Therapy, Color Therapy, Laser Therapy,
Acupunture..... Would these have stopped the progress and began
stimulating healing more quickly? The main problem was that this sets
in so quickly, within 24 hours.... As it is rare, it takes a while for
Mainstream medicine to figure out what's wrong, and begin to address it.
The length of time a person is down with it, causes muscles to atrophe,
foot drop to occur, calcium deposits in joints to build up, etc... which
all have to be addressed with physical therapy later.
So many questions..... Any thoughts?
Health, Hope, Joy & Healing :
May you Prosper, even as your Soul Prospers 3John 2
Jennifer Ruby
Email advice is not a substitute for medical treatment.
http://www.rubysemporium.com
http://groups.yahoo.com/group/SymphonicHealth
______________________________________________
«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤
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Baier and Mary Zimmeth Schomaker. It's the biography of Sue Baier who
went through, and is still recovering from Guillain-Barr Syndrome.
Until reading this book, although reading questions from other posters
on different lists, I had not ever realized what this was, or how it
affected a person.
This disease is basically from a Viral infection, if I understand it
right, and causes total paralasis of the body, leaving mental awareness
intact. In Sue's case, she could only move her eyes. This allowed for
very limited communication, with blinking.
She was in the hospital for 10 months, and then sent home with private
nurses and physical therapists, to continue to recover. She had a Trach
tube for breathing, a feeding tube for feeding, as she couldn't swallow
on her own. She had IV's for fluids and antibiotics, etc.... which some
of the time was in the form of a heprin lock, as her veins had
collapsed, and couldn't replace IV's without this.
As I was reading, the emotions and pain she went though, from "some"
uncaring "professionals", as well as the shut off feeling of not being
able to communicate needs, and the unaware nursing staff with regards to
proper training of suctioning, reading and comprehending charts,
duplication of proceedures due to noncommunication between physicians,
and insensitivity to modesty with regard to leaving to "chat", while
leaving her uncovered for extended periods of time..... I was truely
sympathetic.
I was left questioning:
If an alternative approach was taken, what would the options, and
outcome be?
This disease attacks the Myelin Sheath, like so many nerve conditions.
Would similar proceedures, and modalities work well for this as for
say, Multiple Sclerosis, Polio, Parkenson's???
Would Phosphorus, in homeopahtic dilutions, and variations (Nat., Kali.,
etc) as well as Hypercum, help? What about St. John's wort herbs and
Essential Oils for Massage? Would these have helped stop the
inflamation / infection, and begin healing faster?
Rife Frequencies, Sound Therapy, Color Therapy, Laser Therapy,
Acupunture..... Would these have stopped the progress and began
stimulating healing more quickly? The main problem was that this sets
in so quickly, within 24 hours.... As it is rare, it takes a while for
Mainstream medicine to figure out what's wrong, and begin to address it.
The length of time a person is down with it, causes muscles to atrophe,
foot drop to occur, calcium deposits in joints to build up, etc... which
all have to be addressed with physical therapy later.
So many questions..... Any thoughts?
Health, Hope, Joy & Healing :
May you Prosper, even as your Soul Prospers 3John 2
Jennifer Ruby
Email advice is not a substitute for medical treatment.
http://www.rubysemporium.com
http://groups.yahoo.com/group/SymphonicHealth
______________________________________________
«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤»§«¤»¥«¤
¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯¯