fibro muscular diseasee
Posted: Tue Jun 24, 2008 9:06 am
Hi Group, Have been reading this site for a while, and now want to
actively join in. Have been recently diagnosed with this Dx and want
to know if any Hx out there have had success with it. My main problem
is the R carotid artery which is twisting around on itself and
ballooning out, so that I can feel a distinct lump in my neck, which
is constantly tender. In the ballooning bit the blood flow is
turbulent because of the webbing which is a characteristic of the Dx.
An angiogram of the renal arteries confirmed the Dx because of the
characteristic 'bead necklace' appearance of the arteries. My vascular
surgeon wants to cut out the ballooning and twisting bit and suture
the 2 ends, and I suppose that is an option to prevent the acute
danger of a stroke, but of course it's not going to cure in the long
term. In fact, all the articles I've read about it on the web say it
could reoccur. Plus, I don't want to have an operation if it can be
avoided.
It's sort of a strange Dx because aetiology unknown. As far as I can
understand, it's the arterial walls bunching up and narrowing between
the 'bunches' so causing hypertension, and the bunches have this
'webbing', so contributing to the hypertension because blood flow is
not smooth. My acute problem with the carotid is very unusual because
one of these 'bunches' has ballooned out even further and created the
situation of one branch of the artery (the one going to the brain)
twisting around the other to such a degree that it appears on the
angiogram like two severely intertwined branches of a tree.
Help!! Anyone!!! What are the best Rx with an affinity for arteries?
Liz
actively join in. Have been recently diagnosed with this Dx and want
to know if any Hx out there have had success with it. My main problem
is the R carotid artery which is twisting around on itself and
ballooning out, so that I can feel a distinct lump in my neck, which
is constantly tender. In the ballooning bit the blood flow is
turbulent because of the webbing which is a characteristic of the Dx.
An angiogram of the renal arteries confirmed the Dx because of the
characteristic 'bead necklace' appearance of the arteries. My vascular
surgeon wants to cut out the ballooning and twisting bit and suture
the 2 ends, and I suppose that is an option to prevent the acute
danger of a stroke, but of course it's not going to cure in the long
term. In fact, all the articles I've read about it on the web say it
could reoccur. Plus, I don't want to have an operation if it can be
avoided.
It's sort of a strange Dx because aetiology unknown. As far as I can
understand, it's the arterial walls bunching up and narrowing between
the 'bunches' so causing hypertension, and the bunches have this
'webbing', so contributing to the hypertension because blood flow is
not smooth. My acute problem with the carotid is very unusual because
one of these 'bunches' has ballooned out even further and created the
situation of one branch of the artery (the one going to the brain)
twisting around the other to such a degree that it appears on the
angiogram like two severely intertwined branches of a tree.
Help!! Anyone!!! What are the best Rx with an affinity for arteries?
Liz