hormonal imbalances
Posted: Mon Apr 30, 2007 6:40 pm
Hi,
My 14 yr old daughter has alot of issues due to strep b meningitis
when she was 2 weeks old. She has or had the below
diabetes insipidus- which went away, this was right after the insult
hypothyroidism- takes synthroid
cortisol deficent- takes cortef
seizure disorder- when she 2 yrs old did the keto diet all meds were
stopped. She started mild stares at age 9, so we have her on depakote
500mg a day.
precoucious puberty diag at i think 8 yrs old, so they started lupron
injections until she was12
One yr ago they diag her with growth hormone deficencey. She now is
on the injection daily
This all just to much, asked the endo how they didnt diag GH def
earlier and he said it is rare for one to have prec puberty and
growth hormone defic at the same time. Anything that is rare my
daughter usually has. She is now going through puberty, she is
literally falling asleep while eating, or at school, etc. She will
never have children, so if Drs give her all this crap, why wouldnt
they want to spare her the monthly pain, which she cant tell me what
hurts. I am at a loss and need her to be seen by someone that can
help her, holisticly prefferably. I am in PA but willing to go
wherever.
On the good stuff with my daughter, she was never sopposed to do
anything, sit up, walk, or be able to communicate. She was baptised
twice in the hospital. I do alot of natural thing with her. Age 5 I
started Hyperbaric Oxygen, she walks indendently now, she knows who
we are and has stubborn opinions of her own! She feeds herself and
know who everyone is. She plays and has signs, some words and she is
a funny kids who trys to make you laugh.
We have done Hyperbarics, conductive education, cranial, ketogenic
diet, stopped seizures immediatly. She is now on the specific carb
diet, hippo therapy, aqua therapy.
I feel like we are missing something and would like some opinions on
how I can help her. I know this long, and I tried to keep it short!!
Elaine
My 14 yr old daughter has alot of issues due to strep b meningitis
when she was 2 weeks old. She has or had the below
diabetes insipidus- which went away, this was right after the insult
hypothyroidism- takes synthroid
cortisol deficent- takes cortef
seizure disorder- when she 2 yrs old did the keto diet all meds were
stopped. She started mild stares at age 9, so we have her on depakote
500mg a day.
precoucious puberty diag at i think 8 yrs old, so they started lupron
injections until she was12
One yr ago they diag her with growth hormone deficencey. She now is
on the injection daily
This all just to much, asked the endo how they didnt diag GH def
earlier and he said it is rare for one to have prec puberty and
growth hormone defic at the same time. Anything that is rare my
daughter usually has. She is now going through puberty, she is
literally falling asleep while eating, or at school, etc. She will
never have children, so if Drs give her all this crap, why wouldnt
they want to spare her the monthly pain, which she cant tell me what
hurts. I am at a loss and need her to be seen by someone that can
help her, holisticly prefferably. I am in PA but willing to go
wherever.
On the good stuff with my daughter, she was never sopposed to do
anything, sit up, walk, or be able to communicate. She was baptised
twice in the hospital. I do alot of natural thing with her. Age 5 I
started Hyperbaric Oxygen, she walks indendently now, she knows who
we are and has stubborn opinions of her own! She feeds herself and
know who everyone is. She plays and has signs, some words and she is
a funny kids who trys to make you laugh.
We have done Hyperbarics, conductive education, cranial, ketogenic
diet, stopped seizures immediatly. She is now on the specific carb
diet, hippo therapy, aqua therapy.
I feel like we are missing something and would like some opinions on
how I can help her. I know this long, and I tried to keep it short!!
Elaine